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Objective To develop a framework of population-based primary care quality indicators adapted to patients with dementia and to identify a subset of stakeholder-driven priority indicators.
Design Framework development was carried out through the selection of an initial framework based on a rapid review and identification of relevant indicators and enrichment based on existing dementia indicators and guidelines. Prioritization of indicators was carried out through a stakeholder survey.
Setting Ontario, Quebec, New Brunswick, and Saskatchewan.
Participants Stakeholders in community dementia care (N=109) including clinicians, patients, caregivers, decision makers, and managers.
Main outcome measures Primary care quality indicators.
Results The framework comprised 34 indicators across 8 domains of quality (access, integration, effective care, efficient care, equity, safety, population health, and patient-centred care). Access to a regular primary care provider, continuity of care, early-stage diagnosis, and access to home care were consistently rated as priorities. Equitable care was a specific priority among patients and caregivers; clinicians reported avoidable hospitalizations as among their priorities.
Conclusion A framework of indicators was established for persons with dementia that adds an important dimension to existing primary care and dementia quality indicators by providing primary care and population-based perspectives. This framework could set a foundation for the ongoing monitoring of primary care practices and policies for persons with dementia at a population level.
Dementia, including Alzheimer disease, has been recognized by the World Health Organization as a global public health crisis.1,2 Half a million Canadians live with dementia, a number expected to double over the next generation.3 Moreover, more than 60% of persons with dementia live at home and are cared for in the community.4 There is growing consensus in Canada and elsewhere that family physicians, with the support of other health care professionals, are ideally positioned to provide a person-centred approach with respect to the prevention of dementia and to the diagnosis, treatment, and follow-up of most persons with dementia.5-9 Given the growing role of primary care in the care of the population with dementia, it is essential to monitor and evaluate ongoing quality initiatives or policy interventions aimed at improving the quality of care of persons with dementia in primary care. Quality indicators that align with stakeholders’ needs and can be measured routinely using readily available sources are necessary to ensure feedback and improvement are continuous and decision making is efficient and timely.10,11
Within the primary care literature, several general frameworks have been proposed to measure the quality of primary care.12-14 However, it is unclear whether these frameworks are applicable or appropriate for persons with dementia; incorporate indicators relevant to dementia and of importance to stakeholders; and have indicators that can be measured using routinely collected data such as health administrative data. In addition, within the dementia literature, work on indicators has focused on clinical processes of care assessed primarily through chart review.15-19 While these indicators provide an essential component of the evaluation of the quality of care provided to patients with dementia, they cannot easily be measured routinely.
This study aimed to develop a framework of primary care quality indicators for persons with dementia based on health administrative data and to identify stakeholder-relevant priority indicators for ongoing quality monitoring in this population.
Objective To develop a framework of population-based primary care quality indicators adapted to patients with dementia and to identify a subset of stakeholder-driven priority indicators.
Design Framework development was carried out through the selection of an initial framework based on a rapid review and identification of relevant indicators and enrichment based on existing dementia indicators and guidelines. Prioritization of indicators was ...
Soins de santé primaires ; Démence
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