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Documents  Soins palliatifs | enregistrements trouvés : 97

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This book examines supportive and palliative care and quality of life in cancer patients. Chapters address such topics as anxiety, depression, and delirium in terminally ill cancer patients, ethics in palliative care, palliative care medications, assisted suicide and euthanasia, and much more.

Oncologie ; Soins palliatifs ; Cancéreux - Soins ; Cancer - Aspect psychologique

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L’approche palliative vise à répondre aux besoins des patients ayant certaines maladies chroniques et à ceux de leurs aidants tout au long de la trajectoire de soins. Elle peut être dispensée par des spécialistes non palliatifs. Une lacune importante subsiste dans la compréhension des perspectives et des expériences des prestataires de soins de première ligne pour ce qui est de l’approche palliative en soins intégrés pour les personnes atteintes de démence, ainsi que concernant l’impact des programmes et des modèles existants. Pour y remédier, nous avons réalisé une revue de la portée. Cinq bases de données ont été consultées et des approches descriptives numériques et de synthèse narrative ont été utilisées pour l’analyse des données. Nous avons constaté que : 1) les difficultés associées à la détermination du pronostic et le manque de collaboration interdisciplinaire et intersectorielle constituent des obstacles à l’utilisation d’une approche palliative dans les soins de première ligne ; 2) l’approche palliative a un impact statistiquement et cliniquement significatif sur les personnes avec démence vivant dans la communauté, particulièrement à un stade avancé. Des recherches de haute qualité sont requises sur les modèles de l’approche palliative intégrée et sur leur implantation à des stades moins avancés de la maladie, pour les personnes vivant dans la communauté et souffrant de démence précoce ou légère.
L’approche palliative vise à répondre aux besoins des patients ayant certaines maladies chroniques et à ceux de leurs aidants tout au long de la trajectoire de soins. Elle peut être dispensée par des spécialistes non palliatifs. Une lacune importante subsiste dans la compréhension des perspectives et des expériences des prestataires de soins de première ligne pour ce qui est de l’approche palliative en soins intégrés pour les personnes atteintes ...

Vieillissement ; Personnes âgées ; Démence ; Soins palliatifs

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Purpose of review: Supportive and palliative care services have been an important component of the overall COVID-19 pandemic response. However, significant changes in the provision and models of care were needed in order to optimize the care delivered to vulnerable cancer patients. This review discusses the evolution of palliative and supportive care service in response to the pandemic, and highlights remaining challenges.

Recent findings: Direct competition for resources, as well as widespread implementation of safety measures resulted in major shifts in the mode of assessment and communication with cancer patients by supportive care teams. Telemedicine/virtual consultation and follow-up visits became an integral strategy, with high uptake and satisfaction amongst patients, families and providers. However, inequities in access to the required technologies were sometimes exposed. Hospice/palliative care unit (PCU) bed occupancy declined markedly because of restrictive visitation policies. Collection of patient-reported outcome (PRO) data was suspended in many cancer centers, with resulting under-recognition of anxiety and depression in ambulatory patients. As in many other areas, disparities in delivery of supportive and palliative care were magnified by the pandemic.

Summary: Virtual care platforms have been widely adopted and will continue to be used to include a wider circle of family/friends and care providers in the provision of palliative and supportive care. To facilitate equitable delivery of supportive care within a pandemic, further research and resources are needed to train and support generalists and palliative care providers. Strategies to successfully collect PROs from all patients in a virtual manner must be developed and implemented.
Purpose of review: Supportive and palliative care services have been an important component of the overall COVID-19 pandemic response. However, significant changes in the provision and models of care were needed in order to optimize the care delivered to vulnerable cancer patients. This review discusses the evolution of palliative and supportive care service in response to the pandemic, and highlights remaining challenges.

Recent findings: ...

COVID-19 ; Coronavirus ; Soins palliatifs ; Oncologie

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Purpose of review: A rapid review was conducted to synthesize evidence of palliative care delivery changes during the COVID-19 pandemic. Changes were synthesized according to the eight domains of high-quality palliative care and enduring implications for oncology nurses beyond the pandemic discussed.

Recent findings: The most significant changes occurred in the structure and processes of palliative care (Domain 1), where increased utilization of telehealth was critical in circumventing barriers imposed by COVID-19 mitigation. The suboptimal availability of community-based psychosocial supports for patients and caregivers and inadequate health system-based psychosocial supports for healthcare providers were highlighted (Domains 3-5). The pandemic also ushered in an increased emphasis on the need for advance care planning (ACP), where integrating its delivery earlier in the outpatient setting and shifting policy to promote subsequent virtual documentation (Domain 8) were essential to ensure care preferences were clarified and accessible before health crises occurred.

Summary: Continuing to embrace and sustain systems-level changes with respect to telehealth, psychosocial supports, and ACP are critical to bridging gaps in palliative care delivery underscored by the pandemic. Oncology nurses are well positioned to fill these gaps in care beyond the pandemic by providing evidence-based, palliative care throughout the cancer continuum.
Purpose of review: A rapid review was conducted to synthesize evidence of palliative care delivery changes during the COVID-19 pandemic. Changes were synthesized according to the eight domains of high-quality palliative care and enduring implications for oncology nurses beyond the pandemic discussed.

Recent findings: The most significant changes occurred in the structure and processes of palliative care (Domain 1), where increased utilization ...

Cancer - Soins infirmiers ; Soins palliatifs ; Infirmières en soins palliatifs ; Télémédecine

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Avec l’arrivée de la pandémie en mars 2020, le Québec a restreint de façon significative la présence des proches auprès des patients dans le réseau de la santé et des services sociaux (RSSS). Plusieurs personnes en fin de vie sont décédées seules, sans confort, soins de base, ni accompagnement, dans des conditions discordantes avec la philosophie des soins palliatifs.

L’intervalle de temps entre les deux premières vagues de la pandémie a permis au gouvernement de réaliser un exercice rétrospectif sur la question. Le ministère de la Santé et des Services sociaux (MSSS) invitait alors à une plus grande contextualisation des directives émises sur les visites, reconnaissant l’importance et le rôle que jouent les proches dans la vie et les soins aux patients.

Appuyées par les mots prononcés par des patients, des proches, des membres du personnel soignant et des gestionnaires, nous partageons nos réflexions et observations en tant qu’éthiciennes cliniques. Plus précisément, nous présentons trois enjeux éthiques liés à la présence des proches : l’iniquité découlant de l’interprétation variable des directives, la détresse morale et l’entrave aux valeurs des soins de fin de vie. Nous proposons une approche intégrée des valeurs et abordons la communication comme source de mitigation des enjeux. Nous présentons enfin en quoi les services en éthique clinique peuvent soutenir les équipes, les gestionnaires, les proches et les patients dans la résolution des enjeux liés aux visites.
Avec l’arrivée de la pandémie en mars 2020, le Québec a restreint de façon significative la présence des proches auprès des patients dans le réseau de la santé et des services sociaux (RSSS). Plusieurs personnes en fin de vie sont décédées seules, sans confort, soins de base, ni accompagnement, dans des conditions discordantes avec la philosophie des soins palliatifs.

L’intervalle de temps entre les deux premières vagues de la pandémie a permis ...

Soins palliatifs ; Pandémies ; Éthique

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Faire l'expérience de la transition de son enfant des soins curatifs vers les soins palliatifs | Juin 2022 H

Article (Soins palliatifs et soins spirituels)

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Accompagner vers la mort son enfant atteint de cancer et faire le deuil de celui-ci représente une expérience bouleversante et souffrante à laquelle aucun parent ne souhaite être confronté. En Amérique du Nord, plusieurs dizaines de milliers d’enfants vivent avec le cancer (Snaman et al., 2020). Au Canada, 20 % des enfants atteints de cancer ne survivront pas à leur maladie (Société canadienne du cancer, 2021). Les parents de ces enfants sont leurs proches aidants principaux. Toutefois, le processus psychologique et social que traversent les parents ainsi que leurs besoins psychosociaux durant la fin de vie de leur enfant atteint de cancer sont peu documentés. Le présent article présente une synthèse des connaissances sur l’expérience des parents qui accompagnent leur enfant atteint de cancer vers les soins de fin de vie dans une perspective psychosociale. Cette recension permet, dans un premier temps, de caractériser la transition des soins curatifs vers les soins palliatifs d’un enfant atteint de cancer avancé. Dans un deuxième temps, elle décrit les principaux facteurs psychosociaux qui influencent le vécu des parents à travers la trajectoire de soin de l’enfant, de l’annonce de la maladie jusqu’à la période de deuil. Enfin, des recommandations pour améliorer le soutien psychosocial offert aux parents tout au long de la trajectoire de soin de l’enfant malade, incluant la phase palliative et celle du deuil, sont proposées.
Accompagner vers la mort son enfant atteint de cancer et faire le deuil de celui-ci représente une expérience bouleversante et souffrante à laquelle aucun parent ne souhaite être confronté. En Amérique du Nord, plusieurs dizaines de milliers d’enfants vivent avec le cancer (Snaman et al., 2020). Au Canada, 20 % des enfants atteints de cancer ne survivront pas à leur maladie (Société canadienne du cancer, 2021). Les parents de ces enfants sont ...

Soins palliatifs ; ENFANTS ; Cancer ; Pédiatrie ; Parents et enfants

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Noninvasive respiratory supports for the relief of terminal breathlessness | Juin 2022 H

Article (Soins palliatifs et soins spirituels)

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Purpose of review: Breathlessness is a common symptom in patients with respiratory failure in the terminal phase of their illness. Noninvasive methods of oxygen delivery are frequently used in the palliative setting. We review the evidence supporting noninvasive respiratory supports for the relief of terminal breathlessness in those with life-limiting illnesses.

Recent findings: There is limited evidence to support the use of supplemental oxygen for patients without hypoxia. It is unclear whether the symptomatic benefit of oxygen therapy relates to the oxygen delivery and/or airflow across the nasal mucosa. Early trials suggest that high-flow nasal cannula (HFNC) oxygen therapy improves breathlessness at rest and on exertion for patients with cancer. Noninvasive ventilation (NIV) also appears to improve breathlessness in the palliative setting; however, potential harms include facial pressure injuries, claustrophobia and anxiety. Goals of care should be explicitly discussed and frequently reviewed given that these interventions have the potential for harm and can be challenging to withdraw.

Summary: HFNC oxygen therapy and NIV appear to reduce breathlessness in the palliative setting. Further high-quality trials are needed to confirm the symptomatic benefits of noninvasive respiratory supports on breathlessness for patients with cancer.
Purpose of review: Breathlessness is a common symptom in patients with respiratory failure in the terminal phase of their illness. Noninvasive methods of oxygen delivery are frequently used in the palliative setting. We review the evidence supporting noninvasive respiratory supports for the relief of terminal breathlessness in those with life-limiting illnesses.

Recent findings: There is limited evidence to support the use of supplemental ...

Cancer ; Soins palliatifs ; Insuffisance respiratoire

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Palliative Care in Severe and Persistent Mental Illness: A Systematic Review | Juin 2022 H

Article (Soins palliatifs et soins spirituels)

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Severe and persistent mental illnesses refer to a group of psychiatric disorders causing severe dysfunction in patients and include diagnoses such as schizophrenia, bipolar disorder, and major depression. Patients with severe and persistent mental illnesses have a complex symptomatology and face complicated medical disparities creating a difficult care process and reduced quality of life. Palliative care, a holistic approach to care that aims to reduce symptoms and stress of illness in persons living with chronic diagnoses, is appropriate within this population to address the complexity of care needs but is currently underutilized. The purpose of this review was to systematically review the literature to determine what is currently known about palliative care utilization in the severe and persistently mentally ill population. The databases systematically searched include PubMed, Cumulative Index for Nursing and Allied Health Literature, PsycINFO, and MEDLINE, to find all articles relevant to the research question. Keywords include "palliative care," "end-of-life care," and "severe and persistent mental illness," including all subsets. Literature was reviewed per the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. The results of this systematic review helped synthesize current information about this developing topic to inform clinicians on how to best integrate palliative care to this population.
Severe and persistent mental illnesses refer to a group of psychiatric disorders causing severe dysfunction in patients and include diagnoses such as schizophrenia, bipolar disorder, and major depression. Patients with severe and persistent mental illnesses have a complex symptomatology and face complicated medical disparities creating a difficult care process and reduced quality of life. Palliative care, a holistic approach to care that aims to ...

Soins palliatifs ; Santé mentale

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Palliative Care in Severe and Persistent Mental Illness: A Systematic Review | Juin 2022 H

Article (Soins infirmiers généraux)

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Severe and persistent mental illnesses refer to a group of psychiatric disorders causing severe dysfunction in patients and include diagnoses such as schizophrenia, bipolar disorder, and major depression. Patients with severe and persistent mental illnesses have a complex symptomatology and face complicated medical disparities creating a difficult care process and reduced quality of life. Palliative care, a holistic approach to care that aims to reduce symptoms and stress of illness in persons living with chronic diagnoses, is appropriate within this population to address the complexity of care needs but is currently underutilized. The purpose of this review was to systematically review the literature to determine what is currently known about palliative care utilization in the severe and persistently mentally ill population. The databases systematically searched include PubMed, Cumulative Index for Nursing and Allied Health Literature, PsycINFO, and MEDLINE, to find all articles relevant to the research question. Keywords include "palliative care," "end-of-life care," and "severe and persistent mental illness," including all subsets. Literature was reviewed per the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. The results of this systematic review helped synthesize current information about this developing topic to inform clinicians on how to best integrate palliative care to this population.
Severe and persistent mental illnesses refer to a group of psychiatric disorders causing severe dysfunction in patients and include diagnoses such as schizophrenia, bipolar disorder, and major depression. Patients with severe and persistent mental illnesses have a complex symptomatology and face complicated medical disparities creating a difficult care process and reduced quality of life. Palliative care, a holistic approach to care that aims to ...

Soins palliatifs ; Santé mentale ; SOINS INFIRMIERS

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Previous research suggests that health care providers working with issues of death and dying may experience increased stress and risk of burnout. Despite previous research on the problem of burnout faced by palliative care providers, there have been few interventions studied to prevent further burnout. Research does support allowing time away from a stressful health care environment to promote wellness and to decrease burnout. This pilot study ensured that each palliative care advanced practice provider received an 8-hour day monthly to work on professional development activities remotely. The Professional Quality of Life Scale was completed before and after the addition of the professional development day to measure satisfaction, burnout, and secondary trauma impact. Qualitative feedback was also collected. Results indicated that this intervention decreased burnout, improved compassion satisfaction, and decreased secondary trauma for this team. Recommendations are to further investigate methods to further reduce burnout for this population of health care providers. Results from this pilot study demonstrate that professional development days should be expanded for those providers who are at a high risk for burnout in the hospital setting.
Previous research suggests that health care providers working with issues of death and dying may experience increased stress and risk of burnout. Despite previous research on the problem of burnout faced by palliative care providers, there have been few interventions studied to prevent further burnout. Research does support allowing time away from a stressful health care environment to promote wellness and to decrease burnout. This pilot study ...

Épuisement professionnel ; Bien-être ; Soins palliatifs

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Patients with cancer are living longer, and many experience pain secondary to tumor invasion or as a consequence of cancer-directed therapies. Opioid use disorders and associated morbidity and mortality have increased with dramatic rise during the SARS-CoV-2 pandemic. National and international stakeholders have developed clinical practice guidelines in an effort to curb opioid misuse and overdose-related death. However, to ensure that patients with cancer do not experience barriers to adequate pain management, most of these guidelines are not intended for patients with cancer-related pain or for those receiving palliative or hospice care. Oncology, palliative, and hospice care providers are increasingly tasked with the management of severe disease-related pain in the setting of coexisting opioid use disorder without research on the most effective risk and harm reduction strategies to guide care.

Clinicians should be familiar with addiction medicine and chronic pain literature and be able to incorporate some of these best practices. This case study reviews the management of severe cancer-related pain in a patient with co-occurring opioid use disorder, utilizing many of the best practices in available clinical practice guidelines for the management of chronic non-cancer-related pain.
Patients with cancer are living longer, and many experience pain secondary to tumor invasion or as a consequence of cancer-directed therapies. Opioid use disorders and associated morbidity and mortality have increased with dramatic rise during the SARS-CoV-2 pandemic. National and international stakeholders have developed clinical practice guidelines in an effort to curb opioid misuse and overdose-related death. However, to ensure that patients ...

Cancer ; Opioïdes ; Douleur ; Soins palliatifs ; Toxicomanie

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Primary caregivers face constant challenges because of changes in the clinical situation of the person receiving palliative home care. These changes can alter the health-related quality of life and all its dimensions. This study aimed to describe the health-related quality of life of 137 primary caregivers of people enrolled in a palliative home care program in Bogota, Colombia, applying a quantitative, descriptive, and cross-sectional research design. The Caregiver's Quality of Life Instrument, initially developed by Ferrell, and the sociodemographic characteristics form for caregivers of people with chronic disease, both previously validated in the Colombian population, were used. The results showed that the primary caregivers have a good and adequate overall health-related quality of life; however, they presented some alterations in the physical, psychological, and social dimensions. Therefore, nursing and interdisciplinary palliative care teams should aim their interventions not only at patients but also at primary caregivers during palliative home care.
Primary caregivers face constant challenges because of changes in the clinical situation of the person receiving palliative home care. These changes can alter the health-related quality of life and all its dimensions. This study aimed to describe the health-related quality of life of 137 primary caregivers of people enrolled in a palliative home care program in Bogota, Colombia, applying a quantitative, descriptive, and cross-sectional research ...

Qualité de la vie ; Soins palliatifs ; Aidants naturels ; SOINS INFIRMIERS

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Patients with cancer are living longer, and many experience pain secondary to tumor invasion or as a consequence of cancer-directed therapies. Opioid use disorders and associated morbidity and mortality have increased with dramatic rise during the SARS-CoV-2 pandemic. National and international stakeholders have developed clinical practice guidelines in an effort to curb opioid misuse and overdose-related death. However, to ensure that patients with cancer do not experience barriers to adequate pain management, most of these guidelines are not intended for patients with cancer-related pain or for those receiving palliative or hospice care. Oncology, palliative, and hospice care providers are increasingly tasked with the management of severe disease-related pain in the setting of coexisting opioid use disorder without research on the most effective risk and harm reduction strategies to guide care.

Clinicians should be familiar with addiction medicine and chronic pain literature and be able to incorporate some of these best practices. This case study reviews the management of severe cancer-related pain in a patient with co-occurring opioid use disorder, utilizing many of the best practices in available clinical practice guidelines for the management of chronic non-cancer-related pain.
Patients with cancer are living longer, and many experience pain secondary to tumor invasion or as a consequence of cancer-directed therapies. Opioid use disorders and associated morbidity and mortality have increased with dramatic rise during the SARS-CoV-2 pandemic. National and international stakeholders have developed clinical practice guidelines in an effort to curb opioid misuse and overdose-related death. However, to ensure that patients ...

Cancer ; Opioïdes ; Douleur ; Toxicomanie ; Soins palliatifs ; SOINS INFIRMIERS

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initiating early palliative care for older people with advanced cancer and its barrier | Mars 2022 H

Article (Soins palliatifs et soins spirituels)

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Purpose of review: Early palliative care (EPC) is known to generally improve both health-related quality of life (QoL) and symptom intensity at small effect sizes. However, it is unclear whether EPC is effective in older people, a population that is notoriously unaccounted for. This review summarizes the recent evidence concerning the efficacy of EPC in older patients with advanced cancer and delineates existing barriers to accessing respective services.

Recent findings: The search for studies published in MEDLINE from January 2020 to September 2021 yielded six relevant records. Data from a recent feasibility trial and subgroups from larger randomised trials point to a somewhat lesser decline in QoL for patients undergoing EPC compared to those receiving treatment as usual. However, enrolling older patients in such trials remains a major challenge mostly due to them feeling too ill to participate.

Summary: For older patients, the efficacy of EPC, like many other medical interventions, has hardly been studied so far. Existing work yielded several specific barriers for older patients to access this type of care. Future research should prioritize efficacy trials of EPC tailored to the needs of older patients enabling clinicians to enter truly evidence-based shared decision-making with their patients.
Purpose of review: Early palliative care (EPC) is known to generally improve both health-related quality of life (QoL) and symptom intensity at small effect sizes. However, it is unclear whether EPC is effective in older people, a population that is notoriously unaccounted for. This review summarizes the recent evidence concerning the efficacy of EPC in older patients with advanced cancer and delineates existing barriers to accessing respective ...

Cancer ; Soins palliatifs ; Gériatrie ; Oncologie

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Objectives: Advanced pancreatic cancer (APC) disproportionately impacts older adults. Randomized trials demonstrate improved overall survival (OS) with combination chemotherapy including 5-fluorouracil, irinotecan, leucovorin, and oxaliplatin (FOLFIRINOX) or nab-paclitaxel and gemcitabine compared with gemcitabine alone, but with increased toxicity. Older adults are at increased risk of side effects from chemotherapy. The aim of this study was to assess the efficacy and toxicity of chemotherapy in older adults with APC.

Methods: Patients diagnosed with APC from 2011 to 2016 were identified using the Manitoba Cancer Registry. Patient and treatment characteristics, toxicity, and outcomes of patients 65 years of age and above treated with palliative chemotherapy were compared by treatment regimen. OS was assessed using the Kaplan-Meier method. A Cox regression was used to identify independent predictors of OS.

Results: A total of 87 patients aged 65 years and above received palliative chemotherapy: 52 (59.7%) FOLFIRINOX, 21 (24.1%) nab-paclitaxel and gemcitabine, and 14 (16.1%) gemcitabine, with a median age of 69 (65 to 84), 75 (65 to 88), and 73 (67 to 82), Eastern Cooperative Oncology Group (ECOG) performance status difference in hematologic toxicity between regimens (P=0.807). An increase in nonhematologic toxicity was seen with FOLFIRINOX (P<0.001), specifically neuropathy (P=0.008), fatigue (P<0.001), and nausea/vomiting (P=0.008). FOLFIRINOX was associated with improved radiologic response (P=0.05) and OS (P=0.035). PS, baseline carbohydrate antigen 19-9 level, and chemotherapy regimen were independent predictors of survival.

Conclusions: FOLFIRINOX is associated with improved response and OS in older adults with APC. FOLFIRINOX has a manageable safety profile in this population and should be considered in fit older adults with APC.
Objectives: Advanced pancreatic cancer (APC) disproportionately impacts older adults. Randomized trials demonstrate improved overall survival (OS) with combination chemotherapy including 5-fluorouracil, irinotecan, leucovorin, and oxaliplatin (FOLFIRINOX) or nab-paclitaxel and gemcitabine compared with gemcitabine alone, but with increased toxicity. Older adults are at increased risk of side effects from chemotherapy. The aim of this study was ...

Pancréas - Cancer ; Gériatrie ; Chimiothérapie ; Soins palliatifs

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Background. There is an emerging evidence base about the scope of occupational therapy in palliative and end-of-life care, but little is known about this practice in Québec or barriers impeding it. Purpose. To describe Québec occupational therapists’ practice in palliative and end-of-life care and barriers they encounter. Method. Using the Québec regulatory board members list, we invited occupational therapists working in palliative and end-of-life care to answer an online survey comprising 24 closed- and 5 open-ended questions. We analyzed data using descriptive statistics and content analysis. Findings. The 67 survey participants mainly optimized comfort and safety in meaningful occupations such as mobility, transfers, and hygiene. Barriers to their practice included organizational obstacles and unfamiliarity with their role. Implications. Findings highlight the need to improve education and awareness among occupational therapists and other healthcare professionals about the scope of what occupational therapists can do in palliative and end-of-life care.
Background. There is an emerging evidence base about the scope of occupational therapy in palliative and end-of-life care, but little is known about this practice in Québec or barriers impeding it. Purpose. To describe Québec occupational therapists’ practice in palliative and end-of-life care and barriers they encounter. Method. Using the Québec regulatory board members list, we invited occupational therapists working in palliative and ...

Services de santé - Enquêtes ; Ergothérapie ; Soins palliatifs ; Soins à domicile ; Ergothérapeutes - Déontologie ; Pratique professionnelle

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La construction collective du plaisir au travail en unité de soins palliatifs | 2022 H

Article (Soins palliatifs et soins spirituels)

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Le plaisir au travail n’est pas un donné mais un construit via l’organisation de l’activité. Le collectif est ici primordial parce qu’il permet d’élaborer le sens positif du travail mais aussi parce qu’il permet de le réassurer lorsqu’il fait défaut. Le travail de définition du cadre symbolique de l’activité va permettre de bien faire son travail et donc de ressentir une légitime fierté professionnelle dans les accompagnements présentés comme réussis de la personne malade et de ses proches.
Le plaisir au travail n’est pas un donné mais un construit via l’organisation de l’activité. Le collectif est ici primordial parce qu’il permet d’élaborer le sens positif du travail mais aussi parce qu’il permet de le réassurer lorsqu’il fait défaut. Le travail de définition du cadre symbolique de l’activité va permettre de bien faire son travail et donc de ressentir une légitime fierté professionnelle dans les accompagnements présentés comme ...

Soins palliatifs ; Plaisir

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Dans le bénévolat en soins palliatifs, peut-on parler de bonheur? | 2022 H

Article (Soins palliatifs et soins spirituels)

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L’altruisme renvoie à la notion de dévouement, qui suppose un sacrifice. Il renvoie à un acte désintéressé, qui n’attendrait rien en retour. Ce que l’on peut réfuter en avançant l’argument de l’impossibilité de l’acte gratuit. Les bénévoles trouvent toujours une récompense dans leur action : reconnaissance, socialisation, communion avec autrui, contrition, réparation, plaisir, bonheur…

Bénévolat ; Soins palliatifs ; Bonheur

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Parmi les jeunes adultes atteints de cancer avancé, plusieurs sont parents d’enfants mineurs. Ces parents sont à risque élevé de vivre une détresse importante liée à leur inquiétude pour l’avenir de leur(s) enfant(s) après leur décès. Il existe toutefois peu d’écrits scientifiques sur les besoins psychosociaux de cette population. Cet article vise à rendre compte du vécu et des besoins psychosociaux des jeunes parents atteints de cancer avancé (JPACA) à travers une synthèse des connaissances. Les résultats issus de 25 articles décrivent les principales préoccupations des JPACA concernant leur(s) enfant(s) et leur rôle de parent. De nombreux besoins psychosociaux communicationnels et de soutien découlent de ces préoccupations, et tendent à évoluer alors que la maladie progresse.
Parmi les jeunes adultes atteints de cancer avancé, plusieurs sont parents d’enfants mineurs. Ces parents sont à risque élevé de vivre une détresse importante liée à leur inquiétude pour l’avenir de leur(s) enfant(s) après leur décès. Il existe toutefois peu d’écrits scientifiques sur les besoins psychosociaux de cette population. Cet article vise à rendre compte du vécu et des besoins psychosociaux des jeunes parents atteints de cancer avancé ...

Cancer ; Soins palliatifs

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Auteurs

Maison Michel Sarrazin [11]

Association des bibliothèques publiques du Québec [2]

Foucault, Claudette [2]

Fourcade, Claire [2]

Institut de recherches cliniques de Montréal. Centre de bioéthique [2]

Kinghorn, Shaun [2]

Laval, Guillemette [2]

Lemaire, Gérard [2]

MacDonald, Neil [2]

Macmillan, Karen [2]

Québec (Province). Ministère de la santé et des services sociaux. Direction des communications [2]

Rapin, Charles-Henri [2]

Abraham, Sylvie [1]

Amar, Stéphane [1]

Arcand, M. (Marcel) [1]

Association québécoise des soins palliatifs [1]

Aubry, Régis [1]

Baril, Électa [1]

Bastiani, Flora [1]

Beitel, Garry [1]

Bélanger, Joanne [1]

Berger, Jack M. [1]

Betbèze, Julien [1]

Bioy, Antoine [1]

Boire-Lavigne, Anne-Marie [1]

Bolly, Cécile [1]

Broca, Alain de [1]

Bruera, Eduardo [1]

Buckley, Jenny [1]

Caron, Chantal [1]

Carrier, Micheline [1]

Chai, Emily [1]

Champagne, Manon [1]

Chapados, Claire [1]

Charest, Caroline [1]

Cottencin, Olivier [1]

Craig, Kenneth D. [1]

Daydé, Marie-Claude [1]

Desfosses, Gilbert [1]

Doutrelugne, Yves [1]

Dufour, Marie-Josée [1]

Echard, Bénédicte [1]

Fabre, Michaela [1]

Fondras, Jean-Claude [1]

Fournier, Emmanuel [1]

Gaines, Sandra [1]

Gamlin, Richard [1]

Gendron, Colette [1]

Guirguis-Younger, Manal [1]

Hanks, Geoffrey W.C. [1]

Hassan, Bassam Abdul Rasool [1]

Higginson, Irene [1]

Hopkinson, Jane [1]

Kaye, Alan David [1]

Kuebler, Kim K. [1]

Laflamme, Brigitte [1]

Lambert, Pierrette [1]

Lander, Axelle Van [1]

Lapointe, Johanne [1]

Lavoie, Régina [1]

Le Berre, Rozenn [1]

Lecomte, Micheline [1]

Léveillée, Geneviève [1]

Lortie, Denys [1]

Lynch, Mary E. [1]

Maison Michel Sarazin [1]

Mallet, Donatien [1]

Marmet, Thierry [1]

Mino, Jean-Christophe [1]

Mongeau, Suzanne [1]

Moqadem, Khalil [1]

Morissette, Michel R. [1]

Morita, Tatsuya [1]

Mouren-Mathieu, Anne-Marie [1]

Ngo Ton Sang, Brigitte [1]

Peng, Philip W.H. [1]

Perrier, Michel [1]

Rabier, Gil [1]

Roy, David [1]

Roy, David J. [1]

Saint-Jean, Michèle [1]

Sévigny, Andrée [1]

Société française d'accompagnement et de soins palliatifs. Collège soins infirmiers Ile-de-France [1]

Tremblay, Claudine [1]

Vadivelu, Nalini [1]

Vanhalewyn, Michel [1]

Viallard, Marcel-Louis [1]

Von Gunten, Charles F. [1]

Watson, Max [1]

Zender, Catherine [1]

Zerwekh, Joyce V. [1]

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Date de parution
Descripteurs

Soins palliatifs [97]

Soins en phase terminale [32]

Accompagnement des mourants [10]

SOINS INFIRMIERS [10]

Aidants naturels [7]

Malades en phase terminale [7]

Cancer [6]

Éthique médicale [6]

Soins en phase terminale - Aspect psychologique [6]

Infirmières en soins palliatifs [5]

Mort - Aspect psychologique [5]

Soins palliatifs - Aspect moral [5]

Coronavirus [4]

Deuil - Aspect psychologique [4]

Douleur [4]

Soins palliatifs - Aspect psychologique [4]

Douleur - Traitement [3]

Gériatrie [3]

Malades en phase terminale - Psychologie [3]

Malades en phase terminale - Relations familiales [3]

Malades en phase terminale - Soins à domicile [3]

Oncologie [3]

Soins à domicile [3]

Soins en phase terminale - Aspect moral [3]

Suicide [3]

Accompagnement des mourants - Aspect moral [2]

Biblio-santé - Soins de fin de vie [2]

Cancer - Soins infirmiers [2]

Cancéreux - Soins en phase terminale [2]

Deuil [2]

Enfants et mort [2]

Euthanasie [2]

Malades en phase terminale - Anecdotes [2]

Mort [2]

Mort - Aspect moral [2]

Musicothérapie [2]

Opioïdes [2]

Personnes âgées - Soins [2]

Relations personnel médical-patient [2]

Santé mentale [2]

Soins infirmiers - Périodiques [2]

Spiritualité [2]

Toxicomanie [2]

Acharnement thérapeutique [1]

Aidants naturels - Psychologie [1]

Aide au suicide [1]

Anorexie mentale [1]

Anxiété [1]

Autisme [1]

Bénévolat [1]

Bénévoles dans les services de santé [1]

Bien-être [1]

Bioéthique [1]

Bonheur [1]

Boulimie [1]

Cancer - Aspect psychologique [1]

Cancer - Traitement palliatif [1]

Cancéreux - Soins [1]

Chimiothérapie [1]

Chirurgie [1]

COVID-19 [1]

Démence [1]

Dépression [1]

Dyspnée [1]

ENFANTS [1]

Enfants - Mort - Aspect psychologique [1]

Épuisement professionnel [1]

Ergothérapeutes - Déontologie [1]

Ergothérapie [1]

Éthique [1]

Frères et soeurs [1]

Humour [1]

Hygiène [1]

Infirmières - Stress dû au travail [1]

Insuffisance respiratoire [1]

Maison Michel Sarrazin [1]

Maladie d'Alzheimer - Patients - Soins [1]

Maladies chroniques [1]

Médicaments [1]

Médicaments - Administration [1]

Néonatalogie [1]

Néonatologie [1]

Nutrition [1]

Pancréas - Cancer [1]

Pandémies [1]

Parents - Mort - Aspect psychologique [1]

Parents et enfants [1]

Pédiatrie [1]

Personnes âgées [1]

Peur de la mort [1]

Physiothérapie [1]

Plaisir [1]

Pratique professionnelle [1]

Psychothérapie [1]

Psychothérapie brève [1]

Qualité de la vie [1]

Relations avec la clientèle [1]

Relations soignant-famille [1]

Services de santé - Enquêtes [1]

Soins en phase terminale - Aspect religieux [1]

Soins infirmiers - Aspect psychologique [1]

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