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Documents  Qualité de la vie | enregistrements trouvés : 54

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Objective: To systematically review the problem of appetite loss after major abdominal surgery.

Summary of Background Data: Appetite loss is a common problem after major abdominal surgery. Understanding of etiology and treatment options is limited.

Methods: We searched Medline, Cochrane Central Register of Controlled Trials, and Web of Science for studies describing postoperative appetite loss. Data were extracted to clarify definition, etiology, measurement, surgical influence, pharmacological, and nonpharmacological treatment. PROSPERO registration ID: CRD42021224489.

Results: Out of 6144 articles, we included 165 studies, 121 of which were also analyzed quantitatively. A total of 19.8% were randomized, controlled trials (n = 24) and 80.2% were nonrandomized studies (n = 97). The studies included 20,506 patients undergoing the following surgeries: esophageal (n = 33 studies), gastric (n = 48), small bowel (n = 6), colon (n = 27), rectal (n = 20), hepatobiliary (n = 6), and pancreatic (n = 13). Appetite was mostly measured with the Quality of Life Questionnaire of the European Organization for Research and Treatment of Cancer (EORTC QLQ C30, n = 54). In a meta-analysis of 4 randomized controlled trials gum chewing reduced time to first hunger by 21.2 hours among patients who had bowel surgery. Other reported treatment options with positive effects on appetite but lower levels of evidence include, among others, intravenous ghrelin administration, the oral Japanese herbal medicine Rikkunshito, oral mosapride citrate, multidisciplin-ary-counseling, and watching cooking shows. No studies investigated the effect of well-known appetite stimulants such as cannabinoids, steroids, or megestrol acetate on surgical patients.

Conclusions: Appetite loss after major abdominal surgery is common and associated with increased morbidity and reduced quality of life. Recent studies demonstrate the influence of reduced gastric volume and ghrelin secretion, and increased satiety hormone secretion. There are various treatment options available including level IA evidence for postoperative gum chewing. In the future, surgical trials should include the assessment of appetite loss as a relevant outcome measure.
Objective: To systematically review the problem of appetite loss after major abdominal surgery.

Summary of Background Data: Appetite loss is a common problem after major abdominal surgery. Understanding of etiology and treatment options is limited.

Methods: We searched Medline, Cochrane Central Register of Controlled Trials, and Web of Science for studies describing postoperative appetite loss. Data were extracted to clarify definition, ...

Abdomen - Chirurgie ; Qualité de la vie

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Background
Although efforts to treat hepatitis C virus (HCV) in people who inject drugs (PWID) yield high rates of sustained virologic response (SVR), the relationship between successful HCV treatment and health-related quality of life (HRQOL) among PWID is poorly understood. We examined HRQOL changes throughout HCV treatment and post-treatment for PWID achieving SVR.

Methods
Participants included 141 PWID who achieved SVR following HCV treatment onsite at 3 opioid agonist treatment (OAT) clinics in the Bronx, New York. EQ-5D-3L assesses 5 health dimensions (mobility, self-care, usual activities, pain/discomfort, and anxiety/depression), producing an index of HRQOL ranging from 0 to 1. EQ-5D-3L was measured at baseline; 4, 8, and 12 weeks during treatment; and 12 and 24 weeks post-treatment. Linear mixed effects regression models assessed changes in the mean EQ-5D-3L index over time.

Results
Mean EQ-5D-3L index baseline was 0.66 (standard error [SE] = 0.02). While over half the population reported no baseline problems with self-care (85.1%), usual activities (56.0%), and mobility (52.5%), at least two-thirds reported problems with pain/discomfort (78.0%) and anxiety/depression (66.0%). Twenty-four weeks post-treatment, proportions reporting pain/discomfort and anxiety/depression decreased by 25.7% and 24.0%, respectively. Mean EQ-5D-3L index significantly improved during treatment (P < .0001), and improvement was sustained following treatment completion, with mean EQ-5D-3L index of 0.77 (SE = 0.02) 12 weeks post-SVR.

Conclusions
HCV treatment led to sustained improvement in HRQOL for PWID on OAT who achieved SVR. Future research is necessary to determine whether improvements in HRQOL can be sustained beyond 12 weeks post-SVR.
Background
Although efforts to treat hepatitis C virus (HCV) in people who inject drugs (PWID) yield high rates of sustained virologic response (SVR), the relationship between successful HCV treatment and health-related quality of life (HRQOL) among PWID is poorly understood. We examined HRQOL changes throughout HCV treatment and post-treatment for PWID achieving SVR.

Methods
Participants included 141 PWID who achieved SVR following HCV ...

Opioïdes ; Drogues ; Hépatite C ; Qualité de la vie

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Primary caregivers face constant challenges because of changes in the clinical situation of the person receiving palliative home care. These changes can alter the health-related quality of life and all its dimensions. This study aimed to describe the health-related quality of life of 137 primary caregivers of people enrolled in a palliative home care program in Bogota, Colombia, applying a quantitative, descriptive, and cross-sectional research design. The Caregiver's Quality of Life Instrument, initially developed by Ferrell, and the sociodemographic characteristics form for caregivers of people with chronic disease, both previously validated in the Colombian population, were used. The results showed that the primary caregivers have a good and adequate overall health-related quality of life; however, they presented some alterations in the physical, psychological, and social dimensions. Therefore, nursing and interdisciplinary palliative care teams should aim their interventions not only at patients but also at primary caregivers during palliative home care.
Primary caregivers face constant challenges because of changes in the clinical situation of the person receiving palliative home care. These changes can alter the health-related quality of life and all its dimensions. This study aimed to describe the health-related quality of life of 137 primary caregivers of people enrolled in a palliative home care program in Bogota, Colombia, applying a quantitative, descriptive, and cross-sectional research ...

Qualité de la vie ; Soins palliatifs ; Aidants naturels ; SOINS INFIRMIERS

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Background: Patients with gastrointestinal cancers experience moderate to high levels of sleep disturbance during chemotherapy that decreases their functional status and quality of life (QOL).

Objective: The objectives of this study were to identify subgroups of patients with gastrointestinal cancers with distinct sleep disturbance profiles and evaluate for differences among these subgroups in demographic, clinical, and sleep characteristics, as well as co-occurring symptoms and QOL outcomes.

Methods: Patients (n = 405) completed questionnaires 6 times over 2 cycles of chemotherapy. Latent profile analysis was used to identify subgroups of patients with distinct sleep disturbance profiles.

Results: Three distinct sleep disturbance profiles (ie, low, high, very high) were identified. Compared with the low class, patients in the other 2 classes were significantly younger and less likely to be married and to exercise on a regular basis and received a higher number of previous treatments. Compared with the low class, patients in the other 2 classes reported higher levels of anxiety, depressive symptoms, morning and evening fatigue, and pain and lower levels of attentional function and QOL scores at enrollment.

Conclusions: This study is the first to use latent profile analysis to identify subgroups of patients with gastrointestinal cancers with distinct sleep disturbance profiles. Findings provide new insights on the associations between sleep disturbance and multiple co-occurring symptoms in these patients.

Implications for Practice: Clinicians can identify patients who are at the highest risk for sleep disturbance and recommend a variety of sleep hygiene interventions (eg, establishment of a bedtime routine), as well as initiate interventions for other co-occurring symptoms.
Background: Patients with gastrointestinal cancers experience moderate to high levels of sleep disturbance during chemotherapy that decreases their functional status and quality of life (QOL).

Objective: The objectives of this study were to identify subgroups of patients with gastrointestinal cancers with distinct sleep disturbance profiles and evaluate for differences among these subgroups in demographic, clinical, and sleep characteristics, ...

Anxiété ; Dépression ; Chimiothérapie ; Sommeil ; Fatigue ; Tractus gastro-intestinal - Cancer - Traitement ; Douleur ; Qualité de la vie ; Troubles du sommeil

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Background: Patients generally turn to religion and spirituality when coping with the diagnosis and treatment of chronic diseases.

Objective: The aim of this study was to assess psychosocial problems in relation to spiritual orientation and religious coping among Muslim oncology patients.

Methods: This cross-sectional, correlational study enrolled 406 oncology inpatient participants. Participants completed the Distress Thermometer, the Religious Coping Styles Scale, the Spiritual Orientation Scale, and the The Functional Assessment of Cancer Therapy - General Quality of Life Scale.

Results: As the spiritual orientation levels of the participants increased, use of a positive religious coping strategy also increased and distress levels decreased. In addition, general perceived quality of health increased as spiritual orientation levels and positive religious coping strategy use increased. Participants reported using prayer, daily prayer attendance, offerings, and consulting religious experts to seek healing.

Conclusions: Oncology patients in Turkey experience increased spiritual orientation levels while coping with illness-related psychosocial problems and use positive religious coping methods.

Implications for Practice: The religious beliefs and spiritual orientations of Turkish oncology patients affect their cancer experience, their care, and their quality of life. Determining the religious and spiritual coping methods used by patients to cope with illness-related psychosocial problems may make it easier for nurses to plan patient-specific nursing care.
Background: Patients generally turn to religion and spirituality when coping with the diagnosis and treatment of chronic diseases.

Objective: The aim of this study was to assess psychosocial problems in relation to spiritual orientation and religious coping among Muslim oncology patients.

Methods: This cross-sectional, correlational study enrolled 406 oncology inpatient participants. Participants completed the Distress Thermometer, the ...

Psychologie et religion ; Spiritualité ; Qualité de la vie ; Cancer

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- 334 p.
Cote : WM203.5 P9731a 2022

Dans l'autisme, la transition vers l'âge adulte est très souvent un moment difficile. Difficile tout d'abord pour la personne concernée, mais aussi éprouvante pour ses proches.. Cette période s'inscrit en effet dans un contexte de transformations personnelles et contextuelles, où il va s'agir de s'adapter, de modifier ou de fabriquer des environnements nouveaux.. Les transformations personnelles concernent tout à la fois les modifications neuropsychologiques et somatiques observées durant l'adolescence, que les évolutions cliniques du trouble, dans lesquelles on note souvent l'apparition de nouvelles associations avec d'autres psychopathologies (anxiété, dépression...). Et, pour certains sujets, beaucoup plus rares, c'est aussi l'annonce d'un diagnostic tardif, avec toutes ses conséquences.. Mais l'entrée dans l'âge adulte, c'est aussi une profonde modification de l'environnement du sujet : recherche d'une formation ou d'un emploi, d'un logement, d'un partenaire. Ces contraintes, surdéterminées par le poids des normes sociales, vont nécessiter la mise en place de soutiens, de programmes, d'interventions qui vont mobiliser les parents, la fratrie, mais aussi les employeurs, les personnels éducatifs, et parfois nécessiter des aménagements législatifs et sociétaux concernant ce que certains nomment un « handicap ».. Ce livre, à partir d'une revue de la littérature internationale centrée sur ce thème, et même si beaucoup d'articles concernent l'autisme sans déficience intellectuelle, aborde toutes ces questions.. Il n'y a pas à ce jour de réponses « clés en main ». Chaque pays, parfois chaque région apporte son lot de solutions. Mais, dans tous les cas, une synthèse méritait d'être proposée aux personnes concernées ou intéressées par cette problématique..
Dans l'autisme, la transition vers l'âge adulte est très souvent un moment difficile. Difficile tout d'abord pour la personne concernée, mais aussi éprouvante pour ses proches.. Cette période s'inscrit en effet dans un contexte de transformations personnelles et contextuelles, où il va s'agir de s'adapter, de modifier ou de fabriquer des environnements nouveaux.. Les transformations personnelles concernent tout à la fois les modifications ...

Autisme ; Autisme - Diagnostic ; Troubles du spectre de l'autisme ; Sexualité ; Adultes ; Qualité de la vie

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Objectives: The influence of age on intensive care unit (ICU) decision-making is complex, and it is unclear if it is based on expected subjective or objective patient outcomes. To address recent concerns over age-based ICU decision-making, we explored patient-assessed quality of life (QoL) in ICU survivors before the COVID-19 pandemic.

Design: A systematic review and meta-analysis of cohort studies published between January 2000 and April 2020, of elderly patients admitted to ICUs.

Primary and secondary outcome measures: We extracted data on self-reported QoL (EQ-5D composite score), demographic and clinical variables. Using a random-effect meta-analysis, we then compared QoL scores at follow-up to scores either before admission, age-matched population controls or younger ICU survivors. We conducted sensitivity analyses to study heterogeneity and bias and a qualitative synthesis of subscores.

Results: We identified 2536 studies and included 22 for qualitative synthesis and 18 for meta-analysis (n=2326 elderly survivors). Elderly survivors' QoL was significantly worse than younger ICU survivors, with a small-to-medium effect size (d=0.35 (-0.53 and -0.16)). Elderly survivors' QoL was also significantly greater when measured slightly before ICU, compared with follow-up, with a small effect size (d=0.26 (-0.44 and -0.08)). Finally, their QoL was also marginally significantly worse than age-matched community controls, also with a small effect size (d=0.21 (-0.43 and 0.00)). Mortality rates and length of follow-up partly explained heterogeneity. Reductions in QoL seemed primarily due to physical health, rather than mental health items.

Conclusions: The results suggest that the proportionality of age as a determinant of ICU resource allocation should be kept under close review and that subjective QoL outcomes should inform person-centred decision -aking in elderly ICU patients.
Objectives: The influence of age on intensive care unit (ICU) decision-making is complex, and it is unclear if it is based on expected subjective or objective patient outcomes. To address recent concerns over age-based ICU decision-making, we explored patient-assessed quality of life (QoL) in ICU survivors before the COVID-19 pandemic.

Design: A systematic review and meta-analysis of cohort studies published between January 2000 and April 2020, ...

COVID-19 ; Personnes âgées ; Qualité de la vie ; Coronavirus

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Background
Comprehensive geriatric assessment (CGA) interventions can improve functional ability and reduce mortality in older adults, but the effectiveness of CGA intervention on the quality of life, caregiver burden, and length of hospital stay remains unclear. The study aimed to determine the effectiveness of CGA intervention on the quality of life, length of hospital stay, and caregiver burden in older adults by conducting meta-analyses of randomised controlled trials (RCTs).

Methods
A literature search in PubMed, Embase, and Cochrane Library was conducted for papers published before February 29, 2020, based on inclusion criteria. Standardised mean difference (SMD) or mean difference (MD) with 95% confidence intervals (CIs) was calculated using the random-effects model. Subgroup analyses, sensitivity analyses, and publication bias analyses were also conducted.

Results
A total of 28 RCTs were included. Overall, the intervention components common in different CGA intervention models were interdisciplinary assessments and team meetings. Meta-analyses showed that CGA interventions improved the quality of life of older people (SMD = 0.12; 95% CI = 0.03 to 0.21; P = 0.009) compared to usual care, and subgroup analyses showed that CGA interventions improved the quality of life only in participants’ age > 80 years and at follow-up ≤3 months. The change value of quality of life in the CGA intervention group was better than that in the usual care group on six dimensions of the 36-Item Short-Form Health Survey questionnaire (SF-36). Also, compared to usual care, the CGA intervention reduced the caregiver burden (SMD = − 0.56; 95% CI = − 0.97 to − 0.15, P = 0.007), but had no significant effect on the length of hospital stay.

Conclusions
CGA intervention was effective in improving the quality of life and reducing caregiver burden, but did not affect the length of hospital stay. It is recommended that future studies apply the SF-36 to evaluate the impact of CGA interventions on the quality of life and provide supportive strategies for caregivers as an essential part of the CGA intervention, to find additional benefits of CGA interventions.
Background
Comprehensive geriatric assessment (CGA) interventions can improve functional ability and reduce mortality in older adults, but the effectiveness of CGA intervention on the quality of life, caregiver burden, and length of hospital stay remains unclear. The study aimed to determine the effectiveness of CGA intervention on the quality of life, length of hospital stay, and caregiver burden in older adults by conducting meta-analyses of ...

Personnes âgées ; Qualité de la vie

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- 318 p.
Cote : QT255 F157f 2020

Qualité de la vie ; Exercice ; Éducation physique

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There have been no quantitative studies on dysphagia and its impact on quality of life (QOL) of adults with cerebral palsy (CP). In this cross-sectional study, we aimed to investigate the characteristics of dysphagia symptoms and their impact on QOL in adults with CP on a full oral diet compared with healthy adults. Additionally, we aimed to determine the factors affecting dysphagia-related QOL in this population. We enrolled adults with CP on full oral diet (N = 117) and healthy individuals (N = 117) and interviewed them using the swallowing-quality of life (SWAL-QOL) questionnaire which includes 14 items regarding dysphagia symptoms and 30 items regarding swallowing-related QOL. The functional status of each participant with CP was evaluated using the gross motor function classification system, the manual ability classification system (MACS), and the Functional Oral Intake Scale (FOIS). Among pharyngeal symptoms, choking on food was reported most frequently (sometimes or more 76.9%), followed by coughing and choking on liquid. Among oral symptoms, chewing problems were reported most frequently (sometimes or more 59.8%), followed by food dribbling from the mouth (sometimes or more 53.8%). Compared to healthy adults, those with CP reported worse QOL across all SWAL-QOL items, with the lowest scores obtained for meal duration, followed by communication, burden, fatigue, sleep, and eating desire. On multiple linear regression analysis, higher MACS level, lower FOIS level, and older age were predictors of worse SWAL-QOL score. Among adults with CP, it is necessary to evaluate swallowing function and establish an active intervention plan even if a full oral diet is established.
There have been no quantitative studies on dysphagia and its impact on quality of life (QOL) of adults with cerebral palsy (CP). In this cross-sectional study, we aimed to investigate the characteristics of dysphagia symptoms and their impact on QOL in adults with CP on a full oral diet compared with healthy adults. Additionally, we aimed to determine the factors affecting dysphagia-related QOL in this population. We enrolled adults with CP on ...

Nutrition ; Infirmité motrice cérébrale ; Troubles de la déglutition ; Qualité de la vie

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- 282 p.
Cote : BJ1498 A668a 2019

Style de vie ; Qualité de la vie ; Simplicité ; Lenteur

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[Purpose] The purpose of this study was to examine the effects of time-use intervention on the quality of life of outpatients with chronic stroke. [Participants and Methods] This study randomly allocated 31 chronic stroke outpatients into an experimental group (n=16) and a control group (n=15). The experiment group was given general rehabilitative therapy three times per week for eight weeks, and time-use intervention through counselling once per week for eight weeks. The control group was given general rehabilitative therapy only for three times per week for eight weeks. The World Health Organization Quality of Life-BREF (WHOQOL-BREF) was used to measure the changes in the quality of life of the participants. [Results] After the intervention, the experimental group showed a significant improvement in the overall quality of life in comparison with the control group. Looking at specific categories, the experimental group showed significant improvements in the physical, spiritual, and environmental areas in contrast to the control group. [Conclusion] The findings of this study demonstrated the positive effects of time-use intervention on an improvement in the quality of life of outpatients with chronic stroke.

[Purpose] The purpose of this study was to examine the effects of time-use intervention on the quality of life of outpatients with chronic stroke. [Participants and Methods] This study randomly allocated 31 chronic stroke outpatients into an experimental group (n=16) and a control group (n=15). The experiment group was given general rehabilitative therapy three times per week for eight weeks, and time-use intervention through counselling once ...

Ergothérapie ; Arrêt cardiaque - Traitement ; Rehabilitation ; Maladies chroniques ; Qualité de la vie

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- 126 p.
Cote : HD69.T54 D362o.F 2017

Budgets temps ; Qualité de la vie

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Qualité de la vie [54]

Réalisation de soi [9]

Budgets temps [8]

Habitudes sanitaires [5]

Actualisation de soi [4]

Exercice [4]

Adultes - Santé et hygiène [3]

Alimentation [3]

Conciliation travail-vie personnelle [3]

Éducation physique [3]

Gestion du stress [3]

Simplicité [3]

Adolescents - Attitudes [2]

Adolescents difficiles [2]

Autisme [2]

Bien-être - Aspect économique [2]

Changement (Psychologie) [2]

Déficience intellectuelle [2]

Dépression [2]

Habiletés sociales [2]

Habitudes alimentaires [2]

Handicapés mentaux - Conditions sociales [2]

Lenteur [2]

Morale pratique [2]

Motivation d'accomplissement [2]

Personnes âgées [2]

Programmation neurolinguistique [2]

Relations infirmière-patient [2]

Service social aux adolescents [2]

Soins aux malades - Aspect moral [2]

Soins en institution - Aspect moral [2]

Style de vie [2]

Troubles envahissants du développement [2]

Valeurs sociales [2]

Violence envers les patients [2]

Abdomen - Chirurgie [1]

Administration municipale [1]

Adultes [1]

Aidants naturels [1]

Anxiété [1]

Arrêt cardiaque - Traitement [1]

Autisme - Diagnostic [1]

Autistes - Éducation [1]

Autistes - Réadaptation [1]

Autoefficacité [1]

Bien-être [1]

Bonheur [1]

Cancer [1]

Chimiothérapie [1]

Coronavirus [1]

COVID-19 [1]

Critique (Psychologie) [1]

Développement durable [1]

Douleur [1]

Drogues [1]

Enfants atteints de troubles du développement - Réadaptation [1]

Ergothérapie [1]

Ergothérapie pour personnes âgées [1]

Fatigue [1]

Fatigue - Prévention [1]

Femmes - Biographies [1]

Femmes - Santé et hygiène [1]

Femmes - Santé mentale [1]

Finances personnelles [1]

Habitudes sanitaires - Facteurs liés à l'âge [1]

Handicapés mentaux - Intégration [1]

Hépatite C [1]

Infirmité motrice cérébrale [1]

Intégration sensorimotrice [1]

Maladies chroniques [1]

Médecine préventive [1]

Motivation (Psychologie) [1]

Narcissisme - Humour [1]

Nutrition [1]

Opioïdes [1]

Perception de soi [1]

Personnalité - Changement [1]

Personnalité - Développement [1]

Perte de poids [1]

Plaisir [1]

Psychologie et religion [1]

Réalisation de soi - Anecdotes [1]

Rehabilitation [1]

RELATIONS HUMAINES [1]

Santé - Aspect psychologique [1]

Sécurité financière [1]

Sexualité [1]

Simplicité volontaire [1]

Sociologie [1]

SOINS INFIRMIERS [1]

Soins infirmiers - Philosophie [1]

Soins palliatifs [1]

Sommeil [1]

Spiritualité [1]

Stress - Prévention [1]

Temps - Aspect psychologique [1]

Tractus gastro-intestinal - Cancer - Traitement [1]

Travail - Aspect psychologique [1]

Travail et famille [1]

Troubles de la déglutition [1]

Troubles du sommeil [1]

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